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Local Transplant Centers
Cleveland Clinic (CC)
https://my.clevelandclinic.org/departments/transplant
Cleveland Clinic performs a variety of adult and pediatric transplantation procedures including those for bone and soft tissue, bone marrow, heart, lung, corneas, kidney, pancreas, intestine, liver, and reconstructive transplants such as face and hand. Learn more at the website link above.
University Hospitals (UH)
http://www.uhhospitals.org/cleveland/services/transplant
UH Transplant Institute offers transplantation care to all ages within their kidney, living donor kidney, pancreas, liver, lung, and heart transplant programs. See the link provided to read more.
Housing
Transplant House of Cleveland (THoC)
http://www.transplanthouseofcleveland.org/
THoC provides affordable, temporary housing in the Cleveland area to organ transplant patients and their families.
Fundraising
Children’s Organ Transplant Association (COTA)
Provides fundraising assistance and family support to help children and young adults who need a life-saving transplant.
Help Hope Live
Help Hope Live is a non-profit organization that assists with fundraising efforts for medical expenses that insurance may not cover.
National Foundation for Transplants (NFT)
NFT offers fundraising assistance and guidance to help relieve financial burden, make the transplant process easier and enjoy the gift of life.
Organ Specific
American Liver Foundation (ALF)
https://liverfoundation.org/alf-heartland/
The Heartland Division of ALF provides support to the states of Indiana, Kentucky, and Ohio. Their
services include access to educational programs, support groups, community events and volunteer opportunities.
Kidney Foundation of Ohio, Inc.
This organization’s goal is to promote community acceptance and quality of life for those with renal disease or those who have experienced a kidney transplant. They provide financial assistance, community programs, professional and patient education, and supportive services to promote quality of life.
Mended Hearts & Mended Little Hearts
Mended Hearts is a national and community-based non-profit organization offering the gift of hope to heart disease patients of all ages, their families and caregivers through ongoing peer-to-peer support.
Second Wind Lung Transplant Association
Second Wind is dedicated to helping lung transplant candidates and recipients and people with related pulmonary concerns optimize their quality of life. Family and friends are also invited to be involved as they also as support, education, and guidance through a “spirit of service” are offered.
Managing Medications
GoodRx
A useful website for comparing prices for prescription medications.
MyMedSchedule
MyMedSchedule assists thousands of patients and caregivers to manage meds and labs on the go. Its app allows easy ability to set reminders and communicate with their healthcare providers.
General Education
Cleveland MOTTEP (Minority Organ & Tissue Transplant Education Program)
Cleveland MOTTEP is the only organization in Ohio providing community-based, culturally specific transplant, health and prevention education exclusively to the African American Community.
International Transplant Nurses Society (ITNS)
http://www.itns.org/patienteducation.html
ITNS provides a variety of patient educational materials on topics such as sexual health, diabetes after transplant, dental care, maintaining a healthy lifestyle, skin cancer risk after transplant, and medication management.
Transplant Pregnancy Registry International
www.transplantpregnancyregistry.org
The Transplant Pregnancy Registry is an ongoing research study focused on the effects of pregnancy of transplant recipients and the effects of immunosuppressive medications on fertility and pregnancy outcomes. Information is provided to transplant recipients contemplating post-transplant parenthood and to their healthcare providers.
Donation
Eversight Ohio
Eversight Ohio restores sight and prevents blindness through the healing power of donation, transplantation, and research.
Donate Life America
Donate Life America works to increase the number of donated organs, eyes, and tissue available to save and heal lives through transplantation while developing a culture where donation is embraced as a fundamental human responsibility.
Lifebanc
Lifebanc, a nonprofit organ and tissue recovery organization serves Ohio’s Northeast region. They work closely with local partners, as well as other Organ Recovery Organizations in Ohio to educate the public and healthcare professionals about the benefits of and need for organ, eye, and tissue donation.
State of Ohio Bureau of Motor Vehicles
Learn how you can sign up as an organ donor when you visit the Ohio Bureau of Motor Vehicles (BMV).
National Living Donor Assistance Center (nldac)
https://www.livingdonorassistance.org/Home/default.aspx
Financial support is provided through nldac to promote the possibility of living donation. Eligibility criteria and application process are available at the link above.
Regulatory
Scientific Registry of Transplant Recipients (SRTR)
SRTR is a resource that supports the transplant community to promote ongoing improvement of the patient experience and their outcomes. Program specific reports can be viewed and a comparison of this information among multiple transplant programs are available.
United Network for Organ Sharing (UNOS)
UNOS is a resource to learn about all types of donation and transplantation. They provide the policies by which transplant programs function and they track transplant trends across the United States.
Refer to the following website for a broader selection of resources: https://www.trioweb.org/links.html
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